What a most beautiful weeks we spent at home, love filled with laughter and excitement.
We video a lots and each of them was really a great and joyous one.
However we decided to back to hospital as my hubby started to have vomiting. He could not tolerate for a sip of water coupled with lots of heartburn.
We changed his stomach drainage bag but had no help. Doctor told it was obstruction again due to the tumours but I felt it’s more on gastric issues.
They treated him with IV medication including steroid. I don’t think the steroid is helpful as he started to have thrush and itchy all over body. I requested to stop but doc insisted 2weeks courses.
Guess what, my hubby stomach started to drain some blood and then they stopped steroid immediately.
They then increased the gastric medication to stop bleeding. So it will take weeks for him to recover.
Meanwhile we asked to check PEG but the nurse insisted that the PEG tube had no issue but it leaked out from the side of the tube. It turned out to be a Mission impossible when Doctors all thought that the stomach might have tumour too that blocked the tube.
I got a feeling like being terminally illness patient, all problems is because of tumour. Then just let it be as no further treatment for them. Doctors won’t bother to fix a small issue when there is bigger one there.
I am mentally prepared for disease progression but what if it is NOT?
Could they misjudge or mistreated the patient? Like the steroid stuff?
I need to start camp at this “training ground for green Doctors” to carefully check for their next action before they caused more harm.
I recalled what happened on past Jan. I must guard on him.
Until next time.